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NOTICIAS DE LA ORGANIZACIÓN 
PANAMERICANA DE LA SALUD - OPS
    

 

Beyond release: the equitable use of genomic information

 

 

John Sulston

Wellcome Trust Sanger Institute, Hinxton, Cambridge, UK
Lancet 2003; 362: 400-02 Volume 362, Number 9381 -  August 2003

Website:
http://www.thelancet.com/journal/vol362/iss9381/full/llan.
362.9381.editorial_and_review.26712.1

Keeping of data in the public domain
Issue of patents and intellectual property
Ways to move forward
Conclusions - References

"......Why was it necessary for the public laboratories and databases to make such a fuss about keeping the data in the public domain? From the point of view of scientific research, the chief reason is that genome sequences are about as basic as you can get in terms of biological information. Of no practical use in themselves, they provide fundamental knowledge that has to be interpreted and employed--a tool for future research. Furthermore the sequences are so complex that it is impracticable for investigators to publish and discuss interpretations without the freedom to transmit the underlying information. Private sequence databases are, therefore, of limited value; subscribers who pay to view them must necessarily contract not to redistribute the information or the data would quickly become public and lose their business value. The consequence of dependence on private databases for fundamental information would be severe curtailment of scientific networks...."

 

Discussion Paper:
The ethics of patenting DNA

Nuffield Council on Bioethics, Medical Research Council, the Nuffield Foundation
and the Wellcome Trust, 2002

Discussion paper available as PDF file [109p.] at:
http://www.nuffieldbioethics.org/filelibrary/pdf/theethicsofpatenting
dna.pdf

".....Several thousand patent applications have been made on human genes. But the substantial increase in the rate of patenting of DNA sequences has led to considerable debate about the acceptability of this practice.

This Discussion Paper argues that patents involving DNA sequences should be the exception rather than the rule. It makes recommendations for future policy in the area, including a number of significant changes to the way that patents are granted involving DNA sequences. Most importantly, the tests of inventiveness and usefulness should be more rigorously applied when considering if a patent should be granted.

The Paper also notes that some patents that have already been granted are of doubtful validity and makes recommendations to limit the possible adverse effects of these patents......"

This message from the Pan American Health Organization, PAHO/WHO, 
is part of an effort to disseminate information related to Equity, Health inequality; socioeconomic inequality in health; socioeconomic health differentials. Gender, Violence, Poverty, Health Economics, Health Legislation, Ethnicity, Ethics, Information Technology and Virtual libraries,  Research & Science issues.  [IKM Area]

PAHO/WHO Website: http://www.paho.org/English/HDP/   
EQUITY List - Archives - Join/remove: http://listserv.paho.org/Archives/equidad.html

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